Ill continue to use till the tube runs out. Alla cassa della farmnacia mi presa una paralisi. 33 euro!!!! I'm very sensitive and allergic to most things down there but don't have a problem with this. I will try again - it is Key e (I have missed off the name of the manufacturer this time). Best way to describe is I feel like I am wearing an underwear made out of wool, so it scratches my skin, makes it burn, etc. Mine was food related. Hurts more when sitting. Hi Suki girl. I am better in the morning. Lots of women on this forum have found coconut oil and vit e oil to be a great help. The first time I tried to post, my message didn't get posted because it had to be moderated (I had put the name of the vitamin e suppository. I understand what you are going thru. I think sitting long hours is really bad for vulvodynia and, After trying very hard and spending a lot of money I realised following a particular, My vulvodynia (or my discharge) changes noticeably throughout the month so I am not sure if it's related to my. Follow. I don't want it to come back. Do you think you could send me the name of the consultant dermatologist you saw, who specialised in vulval pain, in a private message? He is a urologist/GYN. Basically, the family of plants that make up the Solanaceae have four main alkaloids that are all toxic to a various extent. Hurts more when sitting. You also need to get drugs that work on the nerve from the inside - amitriptyline. Also burns when walking but not as much or lying down. Hi everyone. That was really helping me with the intercouse. But it seems to me that the toxins were deposited in the mucous membranes of my skin, causing the nerves to react. jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413515328 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024131-5"3285 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez1EzIDOalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emageM"ah832n951s71apnnapssnapaps n iddvvi', 'af_jsencrypt_30616'). For the first few hours after application I thought this was helping with the irritation and itching however within, maybe 4 hours (for some reason my reactions are always delayed - I think its called sensitization) everything was worse than ever, it caused a very bad flare up of the vulvodynia leaving me red, raw, itching and in pain. This page works best with JavaScript. Sto bene per un periodo poi dopo un po' mi torna. There is another product, but it is not a suppository, it is coconut and other oils inserted using an applicator - Yes oil based lubricant. Sei in cerca di ispirazione? Since then have been having pelvic physio and acupuncture which has helped a lot. We are sorry. However, I believe that it was the alternative therapies (acupuncture, manual desensitisation, etc) that actually cured me. ?Taking Daktarcort, which is the brand name for internal vaginal cream, will kill any fungal tissues which are causing the burning, but it is usully advisable to take antibiotics first if it has given you cystits, consult your G.P, if it is an ongoing problem and the tests have showed nothing, then I would still ask for it. The nerves have become hyperactive and hypersensitive due to trauma which can be chemical or physical in source or due to infection. Patient does not provide medical advice, diagnosis or treatment. Nel mio pap test c'era voce: flogosi aspecifica. Makes a huge difference for me. High five for a guy for having sex and a 'slut' stamp for the girl right? jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413515428 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024131-5"4285 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez1E0IDOalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emaraM"eilH-en9489242s3nappsnasnappsna d vidvi', 'af_jsencrypt_30619'), Saginil invorrei sapere in quali casi si rivelato un buon prodotto dando buoni risultati, 1 -Mi piace Registered in England and Wales. But that vulva pain just carries on, day in day out, always there clawing at you. I'm battling vulvodynia as well, for many years. We want the forums to be a useful resource for our users but it is important to remember that the forums are I actually felt pain free enough to have my smear test - big mistake. Here are some things I'd like to share in case it helps anyone else out there: I kept saying 'my' vulvodynia because everyone seems to have different issues, I believe mine is a dermatological issue since the creams help so much but these might not help everyone else. No knickers or trousers! I have developed super hypersensitive skin in the area I presume due to lots of thrush treatments over the years - it took a lot of courage for me to try this gel but did after reading it was helpful for others. Customer Reviews, including Product Star Ratings, help customers to learn more about the product and decide whether it is the right product for them.Learn more how customers reviews work on Amazon. But I am sure it is connected to most diseases. It can also cause depression. In the end it doesnt matter exactly what cures us, just that we are cured. is it a body lotion or a balm thanks, its an emollient (kind of lotion). Now in addition to vag pain have anal pain. Now i avoid all of these foods and I am absolutely symptom-free. However, she did also say that I needed to get up to 50-70mg amitriptyline a day. That's interesting. ciao a tutte, volevo chiedervi di questo prodotto. The good news is that after 1.5 years I was pain free. Quando avevo detto alla mia gine , non ha neanche considerata. Reviewed in the United Kingdom on 28 January 2017. Click Customise Cookies to decline these cookies, make more detailed choices, or learn more. Your recently viewed items and featured recommendations, Reviewed in the United States on November 6, 2016. Apparently the amitriptyline and the acupuncture work well together to dampen down those hyperactive and oversensitive nerves. It is mainly about vaginismus, but the exercises apply to vulvodynia too - just don't do them sitting on a juggling ball (ouch) do them standing up first, then lying down, as it advises in the book. I found coconut oil soothing. I do occassionally give in an have some hot chips (I'm only human!) It also reminds me that I had read that vulvodynia can be caused by a reaction to oxalates in food. These slowly worked for a while and made me comfortable enough to have a long overdue smear test. Thank you for sharing your experience; and its so good to hear of a good doctor and a positive experience. Infuriating. Toilet paper has bleach in it, so I got some tissues that were bleach free and used those to wipe after doing a wee. I had to comment on you mentioning the inflammation in your eyes, scalp and face. Continuous unrelenting pain is horrible. I am taking bioidentical hormones. jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413655591 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024135-5"5916 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez2U1kTMalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emahot"no103_057ps7nasnappsnasnap vididv', 'af_jsencrypt_30602'). Full content visible, double tap to read brief content. So I did a bit of research and found a consultant dermatologist who specialised in vulval pain. I did the manual desensitisation - this is where you stroke yourself very lightly in the painful area, using non-irritating lubricant (I used oil based lube by yes, or coconut oil), just once the first day. Do, I tried everything she suggested and more (low oxalate food, suppliments, saginil gel) and found myself gradually getting better so I continued with everything. You should not rely on such information, and it is not a substitute for advice from a medical professional. On Estrace, in between tried Yes vaginal moisturizer, and the E suppositories u can't mention. Deep breaths have been the best for me but they are so momentary. La mia ginecologa mi ha scritto di prendere saginil. Most recently because my mum died . Patient is a UK registered trade mark. I can't say if this helped my vestibulodynia or not, since the burning disappeared overnight the day before this arrived in the post (it has since come back but very mild, for a short period of time, then disappeared again). Do, I tried everything she suggested and more (low oxalate diet, suppliments, saginil gel) and found myself gradually getting better so I continued with everything. Patient aims to help the world proactively manage its healthcare, supplying evidence-based information on a wide range of medical and health topics to patients and health professionals. It seems that as I grew older I could no longer de-toxify any of this family of foods, and by the time I reached menopause the problem had grown chronic. Coconut oil was soothing (raw, cold pressed, organic coconut oil) so I applied that externally and internally with a clean finger after every time I went to the loo (I carried a little pot in my hand bag so I could apply it while out and about with an organic, pesticide and bleach free cotton pad). I've been to a dermatologist about this for the first time a few months ago, and I'm sure there are good doctors out there but this woman was terrible. It is expensive, as is the post from Italy, but I am so pleased I bought it because it was the only thing my skin could tolerate there and it did make a difference - it reduced the pain so that it was bearable and I could function better with daily life. Over this last year I have been getting dryer down there and have found coconut oil (organic, raw, cold pressed) very helpful - you just get a blob of it on a clean finger and insert it - I do that after every time I go to the toilet. I probably have subconscious thoughts like virginity is the nice honourable thing for a woman and premarital sex is bad. I'm also on a bioidentical estrogen gel that I put on my arms; but have never heard of oral gels. Makes me extra stressed on top of everything. Registered in England and Wales. I think mine was due to persistent thrush infection and the many remedies I tried to cure it, including home remedies such as bathing in a bath with some cider vinegar in - that made my soreness much worse (chemical trauma). Very similar feeling of soreness and irritation to vulvodynia. Ciao, passato un p di tempo.Volevo chiederti se possano esserci conseguenze se il sanigil gel per uso topico viene messointerno. With all your info I will be making a plan and trying to be positive. I am going to try therapy for the first time in my life this week. They were: western acupuncture, physiotherapy, chiropraction and manual desensitisation. I had to apply twice a day as per the instructions for 10 days before I saw an improvement. Poi ho perdite scure 2-3 giorni prima della mestruazione. - Emulsifying Ointment:This immediately made me feel better so might be the most important thing compared to the other points which are more indirect. saginil gel vulvodinia forumtermoablazione carcinoma tiroide. Saginil in.qualcuna l'ha usato? - alfemminile I have never heard of the problem you had with solanine. I started forcing myself to drink 5-6 big glasses of water a day. And recently bv gels just stopped working.). I am on pills for life, for a different illness, and at check ups doctors always told me I need to drink more water after seeing my unclear urine samples. Gine ha dettoChe tutto a posto. ?One dose of Daktacort lasts a while, it may cause a runny feeling but it does work. I did do yoga exercises that free trapped pelvic nerves. I am currently very confused to try which approach. 50ml Extender Cream for Men,Make Enhancement Cream,Enlargement Private Part Increases Energy Mood and Endurance,Larger and Longer For Male, PowerLocus Bluetooth Headphones Over Ear, Foldable Wireless Headphones, Hi-Fi Stereo Headphone with Deep Bass, Micro SD/TF, FM Radio & Wired mode, Built-in Microphones, Soft Earmuffs for Phone/PC, 1996-2023, Amazon.com, Inc. or its affiliates. Very depressed. appropriate medical assistance immediately. It is also important to remember that whatever works will take time - it will reduce the pain slowly and gradually - apparently 1.5 years is good! Sorry, there was a problem saving your cookie preferences. Saginil gel produced by the company Epitech is based on the concept of ALIAmidi Packaging: Airless dispenser 30 ml. The pain is a form of chronic neuropathic pain because it stems from nerve damage as opposed to nociceptive pain which is caused by tissue damage. You can buy it online direct from the manufacturer, epitec. I freaking hate walking around in 'wet' underwear, but better than that awful burning and irritated feeling. Use daily for self-massage for treatment of vuvlodynia. I had the smear test and the pain came back full force - back to square 1. In the end it doesnt matter exactly what cures us, just that we are cured. but for that I can take some of the edge off the pain by taking a strong antihistamine. per 10 applicatori!!! Like Minamii I too feel like there is something wrong internally with me, like an allergy of some sort. Using a layer of gauze swab and a piece of cotton instead of pads feels a ton better than any other commercial pad or liner I have used, no matter how cotton they market it to be. I had six months of trailing round ten doctors none of whom knew what was wrong, three procedures under anaesthetic - all useless. Aufeminin, titolare del trattamento, raccoglie queste informazioni in modo da poterti inviare comunicazioni commerciali personalizzate, soggette ai tuoi interessi. jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413515128 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024131-5"1285 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez1ExIDOalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emageM"ah832n951s71apnnapssnapaps n iddvvi', 'af_jsencrypt_30612'). Diet: I stopped eating tomatoes and all the other nightshades. First I saw a gynaecologist. I am also still on 50mg amitriptyline a day. But I had no other symptoms. I should try to find a different dermatologist but I am so fed up (also broke at this point). Now, different things work for different people because there are different causes for the vulvodynia: infection, physical or chemical trauma, hormones, trapped nerve in back. One particular aloe vera gel helps and coconut oils. Good for you for pursuing a cure. Even now, 5 years later, I still apply coconut oil after every time I go to the toilet, use tonnes of oil based lube during intercourse, go around the house wear no knickers. Anyway sorry for the long post and the ranting, I have some good news / suggestions. I still haven't tried amitriptyline mainly because my vulvodynia has become so very mild lately already so I didn't think it's necessary. Also, there will be blips - recovery will be slow and steady if you stick at what works for you, but sometimes something will happen that makes it a bit worse again e.g. Or my skin / body was just dying with thirstiness.. It didnt bother me that I didnt know what was and wasnt working, all that mattered was that I was getting better. I am going to try estrogen cream next when I pluck up the courage to try again! By that time I had used the steroid cream for as long as is recommended and had stopped it (long term use not recommended). Please try again. Recently I have gone completely dry - my GP thinks my ovaries have finally packed in. It didnt bother me that I didnt know what was and wasnt working, all that mattered was that I was getting better. 10 users are following. Always speak to your doctor before acting and in cases of emergency seek I also got some saginil gel, which is made it Italy from plant ingredients which naturally reduce the nerve overacivity in vulvodynia. She also told me that it is worth just trying everything. Walking helps, and being upright or horizontal! as being in breach of those terms. To my friends credit, she didn't realize, she just assumed that tomato was the only one I had a problem with. The oils keep me comfortable but sex is difficult. I had vulvodynia in 2013, and it was exactly as you describe. He works out of Monmouth Medicsl. google search and it will show pharmacies selling it. My breakthrough came about when I had a bout of gastroenteritis and couldn't eat for about four days. This includes using first- and third-party cookies, which store or access standard device information such as a unique identifier. Poi ho letto sul forum e poi sul foglietto illustrativo che per uso topico. GPs dismiss my diet related inquiries so it's hard to design a diet on my own. but it doesn't clear up yours plus it causes further damages if inserted internally, more burning etc, i asked the pharmacist who is more qualified. I have ordered the gel you recommend from Italy, and it is now on a well known shopping website in the uk too, and a bit cheaper. less postage. Anyway, I went to see my friend the next day and asked her if I could see the label of the sauce. Disclaimer: Information provided on this site is for reference only and is subject to change, or may be out-of-date. and Privacy Policy and steps will be taken to remove posts identified I found out about these ointments from an NHS booklet online, from 4 years ago! So, massage yourself there just enough so as not to cause lasting pain afterwards. I was diagnosed nine months ago with pelvic floor dysfunction/spasm. Seeing a new doctor tomorrow will have a lot of questions. My hormones packed it in 13 years ago when I was 42 and when my HRT is not adequate, these symptoms come roaring back. Also, I know what you mean about a horrid flare up. Ill continue to use till the tube runs out. You have to remember that I'm no doctor, so I can only give my best guess on this. Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. I have nocturnal itching from Vulvodynia and this helped calm any irritation/ no more itching either. My body has adapted to it now.